I talked to my friend this evening. What they think her grandson has is neurofibromatosis - so it's not necessarily life-threatening, but can be. She said she's hoping for the better prognosis, although the doctors have ordered an MRI and talk like they already think it's the more serious version (there are two forms, from what I've read, NF1 and NF2). She said she'll remain optimistic until she has reason not to be. I can't even imagine. Life-threatening or no, I'd be scared spitless.